“I think it’s a crime”: the authorities did not find the money for cure for girl with a dangerous disease

Authorities in Novosibirsk region have refused to buy drugs “Noninert” for four months Sofia Darbinyan, who suffers from spinal muscular atrophy — now the budget has no money. The girl’s mother Anastasia received an official reply with an explanation from the Ministry of health NSO.

What drugs can save

because of the illness diagnosed in the Sophia children it becomes difficult to breathe and walk, and for salvation to be a very expensive treatment. At the moment there are two of the drug for children with SMA that you can buy.